Julia Bascom
Julia Bascom serves as Executive Director at the Autistic Self Advocacy Network. Previously, she did state-level work in her home state of New Hampshire, where she served on the DD council and co-led an inter-agency team to revitalize self-advocacy within the state. Julia edited Loud Hands: Autistic People, Speaking, an anthology of writings by autistic people, and currently serves on the Centene National Disability Advisory Council, the advisory board of Felicity House, and the board of the Consortium for Citizens with Disabilities, and the board of Allies For Independence.

Bibliography:

  • Loud Hands: Autistic People, Speaking (8 December 2012) (editor)
  • And Straight on Till Morning: Essays on Autism Acceptance (28 March 2013) (editor)
  • The Obsessive Joy of Autism (21 May 2015)

Links:

Kieran Rose

Kieran Rose is an Autism Campaigner and International Public Speaker from the UK, with a background in Education and Special Educational Needs. Kieran’s blog has been read by nearly a million people.

He is Managing Director of Infinite Autism; a Social Enterprise supporting Autistic people and their families and is founder and Chair of The Autistic Cooperative, an international network for Autistic-led Advocacy organisations and Autistic Advocates.

Kieran independently train businesses, Local Authority services, Schools, colleges and Universities; and also consults for a number of different North East England and UK national organisations, including the North East Autism Society, Durham Constabulary, Operation Diversity, Addictions UK, FIGS UK and various books, plays and media.

He is also a named consultant on a number of different research papers exploring Autistic Masking, Autistic Burnout, Mate crime, Autistic voice and Social Change; and values research that focuses on the priorities and needs of the Autistic community.

Kieran values the importance of equality-based collaboration between the Autistic Community and non-Autistic Charities, organisations and people who listen, are invested in the Neurodiversity paradigm and social change; and recognise that those with different neurologies need supported in ways that recognise and accept their differences and refrain from normalisation.

He is married to Michelle, who is a Neurodivergent Marketing consultant and Public Speaker. Together they have three children, an Autistic boy, a Neurodivergent boy and an Autistic girl with a range of complex needs.

Kieran was diagnosed Autistic in 2003, at the age of 23. He has a wide range of co-occurring conditions, debilitating sensory issues and is also Selectively Mute.

He’s still just as Autistic now as he was when he was a child.

Links:

Julie Roberts

Julie A. Roberts, M.S., CCC-SLP, Founder and Board President of SLP Neurodiversity Collective; Owner Bayou City Speech & Language; ASHA Certified Speech-Language Pathologist since 1999:

SLP Neurodiversity Collective was founded in January 2018 to support Julie’s vision to serve Autistic and other Neurodivergent people and their families by providing free access to a worldwide directory of credentialed and licensed pro-neurodiversity-focused therapists, and to advocate for changes in therapy practices to reflect use of methodologies and models which presume competence, are non-trauma inducing, and respect human rights, dignity, and sensory preferences. Julie’s desire is for the SLP Neurodiversity Collective to actively partner with disabled people to provide resources and educational opportunities to therapists and to the public. Throughout her career, she has served in various healthcare settings with both pediatric and adult populations and has held key healthcare leadership positions, including National Field Director of Corporate Compliance, and Multi-state Regional Clinical Director for the nation’s largest provider of rehab post-acute care. Julie is a frequent blogger and writes articles on disability rights, empathetic therapy practices, and advocacy efforts. Julie is a passionate and tireless patient/client/student rights advocate and activist. 

Publications:

Discourse Processes, A Multidisciplinary Journal, Volume 30, Number 3 – “Repetition in Narratives of African Americans: The Effects of Aphasia” – Hanna K. Ulatowska, Gloria Streit Olness, CaSaundra L. Hill, Julie A. Roberts, and Molly W. Keebler
https://www.tandfonline.com/doi/abs/10.1207/S15326950dp3003_3

The E.C. Barksdale Memorial Essays in History 1993-1994, Volume 13 – First Place: M.M. McKnight Award in Texas Labor History – “Harry Weisbrod and the Founding of the American Federation of Government Employee Lodge 2132, Dallas, Texas, 1962”

Articles:

Why Perspective-Taking and Neurodiversity Acceptance? (Part 2 of “Training” Social Skills is Dehumanizing: The One with the Therapy Goals)
The Problem with PECS®
“Training” Social Skills is Dehumanizing (Part 1)
A Letter from an SLP to a Parent, Immediately After an Autism Diagnosis for a 5-Year-Old
An ASHA Certified SLP’s Personal Perspective on Collaboration, Interprofessional Practice and ABA

Links:
SLP Neurodiversity Collective Facebook
Bayou City Speech & Language
Bayou City SLP Facebook

Amanda Merlin, M.A., CCC-SLP, ATP, Owner Discover Therapy Services NW; Co-Owner Artful Expressions Speech Therapy and Voice Training; ASHA Certified Speech-Language Pathologist since 2011; Assistive Technology Professional:

As an experienced Speech-Language Pathologist, Healthcare Manager, and Business Owner, Amanda has found a way to balance her passions of education and advocacy. She is especially focused and has centered her practice and advanced education around Alternative and Augmentative Communication (AAC) and Assistive Technology (AT). When her father was diagnosed with ALS, Amanda watched as he rapidly lost his ability to verbally communicate. His voice, both figuratively and literally, was central to his personality; and its loss tremendously impacted how people judged, often wrongly, her father’s capabilities. Witnessing his decline, along with the ways he was unfairly robbed of the ability to fully express himself, inspired Amanda to work diligently to ensure that as many people as possible would have easy and unrestricted access to AAC. Her father’s mantra throughout his illness was “I don’t hope, I believe; hope leaves room for doubt.” His words still ring true in Amanda’s ears today, as she passionately and tirelessly advocates for Presuming Competence in all early communicators, as they receive their first communication tools. We believe!


Links:

Therapy Board Chairpersons

Joleen R. Fernald, PhD, CCC-SLP: Selective Mutism Chair

Dr. Fernald was awarded Board Specialty Recognition in Child Language from the American Speech Language Hearing Association and follows Greenspan and Wieder’s model, DIRFloortime® , when working with children and families. She has a special interest in the social emotional development of young children and its impact on their speech and language skills. As a speech-language pathologist, Dr. Fernald works with children who have a variety of communication disorders. She partnered with Easter Seals NH in 2006 to begin the nation’s first multidisciplinary assessment and treatment clinic specifically for children with selective mutism and has recreated the model in the Tampa Bay area of Florida.  In 2019, Dr. Fernald co-founded a private school for children with special needs that supports individual differences and provides therapeutic intervention within an academic setting.   She enjoys public speaking and is a national and international presenter on the topics of childhood apraxia of speech and selective mutism.  Dr. Fernald enjoys traveling with her husband and two daughters.  She’s a travel agent specializing in all Disney destinations, cruise lines, and all inclusives.  Dr. Fernald enjoys combining her knowledge of special needs with individualized and personalized travel planning. 

Publications:
 
Links:
 
Instagram:  @dr.jo_slp
 

Amy Grant, M.S., CCC-SLP: Language Development and Acquisition Chair

Owner and Director Therapy Center of Buda; ASHA Certified Speech-Language Pathologist since 2005

After working in early childhood intervention and outpatient pediatric clinics; Amy opened Therapy Center of Buda in 2009.  TCOB is an interdisciplinary team of speech-language pathologists and occupational therapists serving the neurodiverse pediatric population.  Amy serves as the Clinic Director and lead Speech-Language Pathologist, supervising assistants and administrative staff.  She practices family centered, child-lead therapy and follows DIRFloortime® and The Scerts® Model.  She has special interests in Autism, social skills without masking, executive functioning skills, narrative language, empowering others to self-advocate, and providing access to alternative forms of communication.  

Amy received extensive training on administering the Autism Diagnostic Observation Schedule (ADOS-2) and provides assistance to pediatricians and neurologists in identifying Autism with the unique perspective of an SLP.  Providing counsel, access and support to apply for social services and grants available to them, helping caregivers to maneuver the school system and empowering them to be strong advocates for their child and/or themselves, and providing education to families about diagnoses, the neurodiversity paradigm, and evidence based therapies are the foundation of her practice.

Links:

Exploring Diversity; Challenging Binary Thinking
Therapy Center of Buda
Facebook: Therapy Center of Buda
Twitter: @TherapyCntrBuda
LinkedIn: www.linkedin.com/in/amygrantslp

Amy Lustig, PhD, CCC-SLP: University Involvement Chair

Dr. Lustig has been a licensed SLP for over 20 years, and worked as a mental health therapist for 10 years before that. Her clinical strengths and passions concern adults with complex presentations, and she specializes in addressing consequences of neurogenic and neurodegenerative diseases and injuries. Dr. Lustig has worked across multiple settings, including as a SLP in the VA hospital systems in Philadelphia and Pittsburgh, PA where she served on the Polytrauma team and was filmed for the “My Parkinson’s Story” instructional video series; as a clinical researcher; as a private practice owner; and currently as an assistant professor at Salus University in Elkins Park, PA, training graduate SLP students. In addition to maintaining a limited private practice (Restorative Speech & Swallow, LLC), she own a consulting service called Kind Transitions, which she created in 2018 in an attempt to fill a gap in support for individuals and families coping with decision-making during difficult, transitional times in chronic and progressive illness. Dr. Lustig is passionate about advocating for the recognition of neurodiversity as an authentic, necessary framework for autonomy and self-determination. She is dedicated to client-centered perspectives and interventions that embrace individualized, heuristic principles.

Education:     
BA in Psychology, Bard College, 1980
MEd in Counseling Psychology, Cambridge College, 1982
MA in Speech-Language Pathology, University of Pittsburgh, 1996
MPH, Behavioral and Community Health Sciences, University of Pittsburgh, 2002
PhD in Communication Science and Disorders, University of Pittsburgh, 2004

Selected Publications:
Lustig, A P. (2018). Evidence-based practice in ALS and dysarthria: Case study. In Molfenter, S.M and Branski, R. (Eds), Case Studies in Speech-Language Pathology. New York, NY: Thieme Medical Publishers.
Lustig, A. P. & Ruiz, C. (2015). Drug-induced movement disorders: Effects on communication and swallowing. ASHA SIG 2, Perspectives on Neurophysiology and Neurogenic Speech and Language Disorders.
Lustig, A P. (2014). Getting it down and getting it out: Understanding communication and swallowing in frontotemporal dementia. In Radin, L. & Radin, G. (Eds), What If It Isn’t Alzheimer’s? A Caregiver’s Guide to Dementia (3rd ed.). Amherst, NY: Prometheus Books.
Robinson, K.M. & Lustig, A P. (2014). Rehabilitation interventions: Uses and benefits of speech, occupational, and physical therapies. In Radin, L. & Radin, G. (Eds), What If It Isn’t Alzheimer’s? A Caregiver’s Guide to Dementia (3rd ed.). Amherst, NY: Prometheus Books.
Schulz, R., Rosen, J., Klinger, J., Musa, D., Castle, N., Kane, A. & Lustig, A. (2014). Effects of a psychosocial intervention on caregivers of recently placed nursing home residents: A randomized controlled trial. Clinical Gerontologist, 37, 347-367.
Schulz, R., Czaja, S.J., Lustig, A., Zdaniuk, B., Martire, L.M., & Perdomo, D. (2009). Improving the quality of life of caregivers of persons with spinal cord injury: A randomized controlled trial. Rehabilitation Psychology, 54, 1-15. (Winner of the Harold Yuker Award for best paper in Rehabilitation Psychology, 2010, American Psychological Association.)
Doyle, P.J., McNeil, M.R., Mikolic, J.M., Prieto, L., Hula, W., Lustig, A.P., Ross, K.R., Wambaugh, J.L., Gonzalez-Rothi, L.J., & Elman, R.J. (2004). The Burden of Stroke Scale (BOSS) provides valid and reliable score estimates of functioning and well-being in stroke survivors with and without communication disorders. Journal of Clinical Epidemiology, 57, 997-1007.
Martire, L.M., Lustig, A.P., Schulz, R., Miller, G. E., & Helgeson, V.S. (2004). Is it beneficial to involve a family member? An integrative review and meta-analysis of family-focused interventions for chronic illness. Health Psychology, 23, 599-611.
Schulz, R., Lustig, A., Handler, S., Martire, L. (2002). Technology-based caregiver intervention research: Current status and future directions. Gerontechnology, 2, 15-47.
Lustig, A.P., & Tompkins, C.A. (2002). A written communication strategy for a speaker with aphasia and apraxia of speech: Treatment outcomes and social validity. Aphasiology, 16, 507-521.
Tompkins, C.A. & Lustig, A.P. (2001). Applying research principles to language intervention. In R. Chapey (Ed.), Language Intervention Strategies in Adult Aphasia (4th ed.). Baltimore: Williams & Wilkins.

Links:             

www.RestorativeSpeech.com

www.KindTransitions.com

Jenny McGlothlin, M.S., CCC-SLP, CLC: Swallowing and Responsive Feeding Chair

Jenny McGlothlin, M.S., CCC-SLP, CLC; ASHA Certified Speech-Language Pathologist since 2002; ALPP Certified Lactation Counselor since 2018; Author and International Speaker; Feeding Expert

Jenny is a certified Speech-Language Pathologist and Certified Lactation Counselor at the University of Texas at Dallas Callier Center for Communication Disorders where she specializes in the evaluation and treatment of feeding disorders for children from birth through the teen years as well differential diagnosis and treatment of motor speech disorders. She developed the STEPS feeding program at the Callier Center in 2005, where she works with families on a daily basis to foster feeding skills that will serve a child for a lifetime. Jenny’s passion is teaching children how to eat when they just can’t figure it out on their own while helping families enjoy peaceful mealtimes with their children through a responsive feeding approach. Jenny has been inducted into the Texas Speech-Language-Hearing Association’s Hall of Fame for her work in the field. For the last 6 years, she has also worked as a research project manager, working with a team to design and implement studies in speech sound production disorders, articulation screening, and ALS

Her passion for responsive feeding therapy led to the writing of two books, which she co-authored with Dr. Katja Rowell.  Jenny spent many years teaching graduate-level courses on feeding as well as early child development. She frequently provides feeding workshops for parents and continuing education seminars and webinars for therapists nationally and internationally.

Jenny is passionate about advocacy and public policy that affects individuals with communication and feeding disorders. She became the Vice President of Social and Governmental Policy for the Texas Speech-Language-Hearing Association in January 2020; this position will allow her to advocate for improved policy and regulations affecting the most vulnerable populations as well as protecting the professions of SLP and Audiology from scope of practice encroachment.  

Publications:

Helping Your Child with Extreme Picky Eating, New Harbinger Publications, 2015
Conquer Picky Eating for Teens and Adults, Amazon, 2018
Lawrence D. Shriberg, Thomas F. Campbell, Heather L. Mabie & Jenny H. McGlothlin (2019) Initial studies of the phenotype and persistence of speech motor delay (SMD), Clinical Linguistics & Phonetics, 33:8, 737-756
Chapman, S.B., Max, J.E., Gamino, J.F., McGlothlin, J.H., Cliff, S.N. (2003) Discourse plasticity in children after stroke: Age at injury and lesion effects. Pediatric Neurology, 29(1), 34-41.

Links:

Extreme Picky Eating Help: Media & Articles 
The Nuance Between a Responsive &. Behavioral Approach to Feeding Therapy: Applied Behavior Analysis (ABA) Professionals & Feeding Intervention
The Nuance Between a Responsive &. Behavioral Approach to Feeding Therapy: The Case For a Responsive Approach to Feeding Therapy
Responsive Feeding Therapy Conference, May 2020
Extreme Picky Eating Help Facebook Page 

Amanda Merlin, M.A., CCC-SLP, ATP: AAC/AT Chair

Owner Discover Therapy Services NW; Co-Owner Artful Expressions Speech Therapy and Voice Training; ASHA Certified Speech-Language Pathologist since 2011; Assistive Technology Professional:

As an experienced Speech-Language Pathologist, Healthcare Manager, and Business Owner, Amanda has found a way to balance her passions of education and advocacy. She is especially focused and has centered her practice and advanced education around Alternative and Augmentative Communication (AAC) and Assistive Technology (AT). When her father was diagnosed with ALS, Amanda watched as he rapidly lost his ability to verbally communicate. His voice, both figuratively and literally, was central to his personality; and its loss tremendously impacted how people judged, often wrongly, her father’s capabilities. Witnessing his decline, along with the ways he was unfairly robbed of the ability to fully express himself, inspired Amanda to work diligently to ensure that as many people as possible would have easy and unrestricted access to AAC. Her father’s mantra throughout his illness was “I don’t hope, I believe; hope leaves room for doubt.” His words still ring true in Amanda’s ears today, as she passionately and tirelessly advocates for Presuming Competence in all early communicators, as they receive their first communication tools. We believe!

Links:

Jenah Nugent-Fullam, M.A., CCC-SLP: Medical Rehab and Geriatrics Chair

Jenah Nugent-Fullam, M.A., CCC-SLP (She/Her), ASHA Certified Speech Language Pathologist since 2011

Jenah is a certified Speech-Language Pathologist with significant experience in the medical setting, including acute care and acute inpatient rehabilitation. In 2016, she served as the primary Speech-Language Pathologist on a medical team, helping them to successfully launch a neurologically-based outpatient clinic in San Antonio, Texas. Jenah is passionate about caring for our aging population and their families. She holds Specialty Certification in SPEAK OUT!© Voice treatment for Parkinson’s Disease, and treats a wide range of acute to chronic disorders including post-stroke, Parkinson’s disease,  tracheostomy and ventilated patients, dysphagia, voice disorders, and long term care of Veterans with Traumatic Brain Injury.

Jenah enjoys mentoring students and new graduates, and previously taught University students at both Texas Women’s University and NOVA Southeastern University as a graduate-level Externship Supervisor.  An unflagging patient advocate – both during and post-treatment, Jenah believes that everyone, regardless of age, or ability has the fundamental right to self-determine their idea of quality of life.

Panel presenter-SA Moves Parkinson’s Symposium (2018)
SPEAK OUT© Certified Provider 

Shawna Pope-Jefferson, M.S., CCC-SLP; Dyslexia Chair

Shawna Pope-Jefferson M.S., CCC-SLP since 1998.  Owner: Language and Literacy Solutions. Literacy Specialist. Dyslexia Specialist. Structured Word Inquiry Specialist.

Shawna is a certified Speech-Language Pathologist, literacy specialist, and clinic owner. Past experiences include positions as both a Senior Lecturer and a Clinical Supervisor in the Department of Communication Disorders and Sciences at Southern Illinois University – Carbondale, as well as various placements in healthcare settings serving both pediatric and adult populations. Shawna has been an advocate and activist throughout her career for minority representation in the field of speech-language pathology, best practices for serving autistic students, and best practices in literacy intervention. She also served as Vice President of the non-tenure track Faculty Association at Southern Illinois University – Carbondale.  

Shawna currently devotes herself to life-long learning about the English writing system and the clients she serves. She also provides professional development workshops for teachers and speech-language pathologists.  Shawna offers a valuable combination of clinical knowledge and skills in the areas assessment and intervention for language and literacy disorders in neurodivergent populations.

Links: 

LANGUAGE AND LITERACY SOLUTIONS

Julie Roberts Julie A. Roberts, M.S., CCC-SLP: Advocacy and Activism Chair

Founder and Board President of SLP Neurodiversity Collective; Owner Bayou City Speech & Language; ASHA Certified Speech-Language Pathologist since 1999:
SLP Neurodiversity Collective was founded in January 2018 to support Julie’s vision to serve Autistic and other Neurodivergent people and their families by providing free access to a worldwide directory of credentialed and licensed pro-neurodiversity-focused therapists, and to advocate for changes in therapy practices to reflect the use of methodologies and models which presume competence, are non-trauma inducing, and respect human rights, dignity, and sensory preferences. Julie’s desire is for the SLP Neurodiversity Collective to actively partner with disabled people to provide resources and educational opportunities to therapists and to the public. Throughout her career, she has served in various healthcare settings with both pediatric and adult populations and has held key healthcare leadership positions, including National Field Director of Corporate Compliance, and Multi-state Regional Clinical Director for the nation’s largest provider of rehab post-acute care. Julie is a frequent blogger and writes articles on disability rights, empathetic therapy practices, and advocacy efforts. Julie is a passionate and tireless patient/client/student rights advocate and activist. 

Publications:

Discourse Processes, A Multidisciplinary Journal, Volume 30, Number 3 – “Repetition in Narratives of African Americans: The Effects of Aphasia” – Hanna K. Ulatowska, Gloria Streit Olness, CaSaundra L. Hill, Julie A. Roberts, and Molly W. Keebler
https://www.tandfonline.com/doi/abs/10.1207/S15326950dp3003_3

The E.C. Barksdale Memorial Essays in History 1993-1994, Volume 13 – First Place: M.M. McKnight Award in Texas Labor History – “Harry Weisbrod and the Founding of the American Federation of Government Employee Lodge 2132, Dallas, Texas, 1962”

Articles:

Why Perspective-Taking and Neurodiversity Acceptance? (Part 2 of “Training” Social Skills is Dehumanizing: The One with the Therapy Goals)
The Problem with PECS®
“Training” Social Skills is Dehumanizing( Part 1)
A Letter from an SLP to a Parent, Immediately After an Autism Diagnosis for a 5-Year-Old
An ASHA Certified SLP’s Personal Perspective on Collaboration, Interprofessional Practice and ABA

Links:
LinkedIn
SLP Neurodiversity Collective Facebook
Bayou City Speech & Language
Bayou City SLP Facebook

 

Greg Santucci, MS, OTR/L: Sensory Processing Disorder Chair

Greg Santucci is a Pediatric Occupational Therapist and the owner of Power Play Pediatric Therapy. He is the Supervisor of Occupational Therapy at Children’s Specialized Hospital and the Clinical Liaison for the New Jersey Autism Center of Excellence (NJACE). Greg is certified in Sensory Integration and presents workshops nationally on topics related to sensory processing, challenging behaviors and improving school-based therapy services. A strong advocate for all children, Greg is a firm believer in the power of PLAY! He uses play as his primary modality to help kids of all abilities learn new skills and become more independent. Greg’s clinical practice is dedicated to helping parents and professionals understand and appreciate a child’s neurodiversity and the different ways they experience the world. Committed to the belief shared by Dr. Ross Greene that “Kids do well if they can”, Greg is passionate about helping caregivers see “behaviors” through new lenses and teaching them how they can support their sensational kids!